Dear Meniere’s,

Just writing to let you know that your time is limited. A cure is coming. You stole pieces of us, and we want it all back.

Never yours,

Julieann

1am.

Hello world. Not sleeping!!! Tossing and turning.

My mind is stuck on writing letters. My mind is obsessing with writing a letter to Meniere’s disease to tell it what I think …

Dear Meniere’s,

Dear Vertigo,

Dear Left Ear,

Dear Hearing Loss,

Dear Brain Fog … wait … is that brain fog (shakes head), what was I thinking again?

Dear Ear Fullness,

Dear TINNITUSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS!

Dear Me Before Meniere’s Disease,

To My Dear Children, I’m sorry …

Dear, Dear Meniere’s Disease, we have to talk …

I feel like going to the window, opening it and yelling out to the neighbourhood, ‘I’m awake, everyone! I think I’m going crazy!’

We need a cure. We need a cure.

Except, we need money to fund the researchers …

Could we create a book of letters to Meniere’s and donate the money to research?

Could we use the book to show doctors and ENTs and disbelieving friends and family what we go through?

Could the book be used when applying for disability support so they can truly understand?

And then I’m scrolling through Meniere’s social media groups.

Symptoms.

Frustrations.

Hopelessness.

Despair.

HELP!!!!!!!!!!!!!!!!!!!!!

Misery dripping from every word of a life lived with Meniere’s.

I feel like crying.

I have to get off Facebook for a while before it pulls me back to the dark abyss of Meniere’s.

I close my eyes and take a deep, calming breath.

It’s time to create the Letters to Meniere’s book. I’m stepping up awareness for Meniere’s disease, and seeking revenge by creating a satisfying book of Letters to Meniere’s, written by the people who live with the condition.

Yep. Let’s do this!

Gather a team of inspiring Meniere’s Ninjas to help bring the book to fruition. CHECK

• Heather Davies of Meniere’s Muse PODCASTS on Spotify and VEDA Ambassador, also the narrator of my Meniere’s novel, ‘The Colour of Broken’ on Audible.

• Steve Schwier, who rode an e-bike 1,400 miles from Denver, Colorado to Columbus, Ohio to bring awareness to Meniere’s Disease. His difficult and gruelling ride is chronicled in his memoir, “On the Vertigo: One Sick Man’s Journey to Make a Difference”.

• Anne Elias, mover and skaker of the Sydney Meniere’s Support Group, and instigator of our amazing Webinars with Meniere’s professionals.

Lilly Pilly Publishing on board for book design, format and printing. CHECK

Call out for submissions created CHECK

Time to spread the word.

Please join the Meniere’s community as we write letters to Meniere’s disease. We’d love for you to share your story, or, a story, through a letter. Sign your letter off with your first name, or a fictional name. Go to https://www.lillypillypublishing.com/letterstomenieresproject for more information and guidelines. Profits will be donated to Meniere’s research.  

Let’s laugh together, cry together, and … understand. That’s what our letters and artwork will do. That’s what we can do. It takes a village.

We’re on a mission. A terribly important mission.

Dear Meniere’s,

Imagine a world where Meniere’s disease, that’s you, has been eradicated …

https://www.julieannwallaceauthor.com/

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Julieann Wallace is a multi-published author and artist. When she is not disappearing into her imaginary worlds as Julieann Wallace – children’s author, or as Amelia Grace – fiction novelist, she is working as a secondary teacher. Julieann’s 7th novel with a main character with Meniere’s disease—‘The Colour of Broken’—written under her pen name of Amelia Grace, was #1 on Amazon in its category a number of times, and was longlisted in 2021 and 2022, to be made into a movie or TV series by Screen Queensland, Australia. She donates profits from her books to Macquarie University, where they are researching Meniere’s disease to find a cure. Julieann is a self-confessed tea ninja and Cadbury chocoholic, has a passion for music and art, and tries not to scare her cat, Claude Monet, with her terrible cello playing.